update.
as i mentioned,
parker got blood work done last monday.
he had a CPK and a CBC drawn.
tuesday as i was driving home from work D calls
to tell me he just got off the phone with park's doctor.
WHAT?! at 6:30pm.
he called with the blood results because he knew i was concerned.
he explained as much as he could to D
who relayed as much as he could to me and
we were to discuss it overnight and i was supposed to call him
the next day to talk.
a CPK test determines whether or not a person has
muscular dystrophy.
we are thanking our lucky stars that parker does not have MD.
and will never.
but that doesn't mean his blood work was perfect.
the normal level of a toddlers CPK is 70iu/l
and the level of a toddler with MD is in the 10,000-20,000iu/l range.
parker's was 280.
slightly elevated...a bit of a gray area.
(of course nothing is just cut and dry)
so reasons for this could be:
1.because it tests the serum in his muscles
and parker had just gotten 3 intra-muscular shots
in his thighs that morning.
2. there's a small chance he could have a rare, mild muscular disorder.
so after googling for hours
and discussing things over with his doc,
we are going to give pj alittle time.
see if the PT helps
and evaluate the situation at 18 months.
he gave us the option to be referred to a neurologist,
but said that with that slight of an elevation
a neurologist would probably just 'shrug us off'.
and the chance of him having some kind of rare muscular issue
would be very hard to diagnose at this young age
i don't want to put him through
lots of unnecessary testing.
IF at 18 months he still isn't walking/progressing
he will probably refer us to a neurologist at that point
because of lack of progress,
opposed to just the elevated CPK level.
so there ya have it!
fun stuff.
i knew if i didn't write it down i would forget.
and i'm hoping in a few years i can look back at this
and remember stressing over nothing :)
sorry for the lack of pics in my posts.
i have been taking pics,
just gotta get them on here.
oh ya, his CBC (complete blood count) was totally normal.
carpe diem
SEP
1 comment:
thinking of you!
Post a Comment