Feb 10, 2012

sweet treat

last night pj actually ate a pretty decent dinner.
and by decent i mean
2 bites of a string cheese,
a couple broccoli cheese noodles,
maybe 5 peas
and 1 bite of banana.
that is after refusing to eat,
yogurt
applesauce
chewing and spitting out every piece of strawberry
and green beans.
 
so....as a reward
he got to experience a mini twix bar!
i may or may not have passed on my love for these
little pieces of heaven.
i'll let you decide.






carpe diem
SEP

Feb 8, 2012

picasso


parker might just be the new pablo.
 lefty?
 righty?
 he was way more interested
in putting the crayons back in the box 
than actually drawing.
whatev!
p.s. today is p's 16 month bday.
he's going to get a treat for dinner to celebrate....

Feb 7, 2012

Happy Tuesday

So I didn't want to leave y'all hangin, but nothing too exciting to report. A woman from First Steps came to our home yesterday for me to basically sign my life away :) Just lots of info and consent forms. We also went over a questionnaire about what Parker is and isn't doing. She takes all that info and someone will be contacting me with 3-4 days to actually come evaluate him which will then determine if he qualifies for the program.

He is going to his first PT apt. on Friday morning. Wish us luck! He's not a fan of strangers, to say the least. (probably the only drawback of not going to day care) So, of course, I envision lots of clinging and crying. Should be fun!

I'll leave you with some iPhone pics.

Feb 3, 2012

bloodwork

update.
as i mentioned,
parker got blood work done last monday.
he had a CPK and a CBC drawn.
tuesday as i was driving home from work D calls
to tell me he just got off the phone with park's doctor.
WHAT?! at 6:30pm.
he called with the blood results because he knew i was concerned.
he explained as much as he could to D
who relayed as much as he could to me and
we were to discuss it overnight and i was supposed to call him
the next day to talk.

a CPK test determines whether or not a person has 
muscular dystrophy.
we are thanking our lucky stars that parker does not have MD.
and will never.
but that doesn't mean his blood work was perfect.
the normal level of a toddlers CPK is 70iu/l
and the level of a toddler with MD is in the 10,000-20,000iu/l range.
parker's was 280.
slightly elevated...a bit of a gray area.
(of course nothing is just cut and dry)
so reasons for this could be:
1.because it tests the serum in his muscles
and parker had just gotten 3 intra-muscular shots
in his thighs that morning.
2. there's a small chance he could have a rare, mild muscular disorder.

so after googling for hours
and discussing things over with his doc,
we are going to give pj alittle time.
see if the PT helps
and evaluate the situation at 18 months.
he gave us the option to be referred to a neurologist,
but said that with that slight of an elevation
a neurologist would probably just 'shrug us off'.
and the chance of him having some kind of rare muscular issue
would be very hard to diagnose at this young age
i don't want to put him through 
lots of unnecessary testing.
IF at 18 months he still isn't walking/progressing
he will probably refer us to a neurologist at that point
because of lack of progress, 
opposed to just the elevated CPK level.

so there ya have it!
fun stuff.
i knew if i didn't write it down i would forget.
and i'm hoping in a few years i can look back at this
and remember stressing over nothing :)

sorry for the lack of pics in my posts.
i have been taking pics, 
just gotta get them on here.

oh ya, his CBC (complete blood count) was totally normal.





carpe diem
SEP

Feb 1, 2012

15 months

actually parker turns 16 months next week
but since he went to the doc yesterday
 for his 15mon well baby visit
i'll talk about him like a 15mon old...mkay?

STATS: 19lbs 8oz (below 5th perc. even father below than at 12mon)
                        29inches long (which means he grew HALF an inch in 3 months.
pretty sure his nurses suck at measuring 
because some of his clothes are actually getting smaller)
we finally put away his 9 month onsies.
still wearing all 12month clothes.
and i forget how big his head was,
but it was around the 30th percentile.

new things he does that we think are cute:
pants like a puppy
says BAA for a sheep
grunts like a pig
plays in the toilet (not so cute)
will dance and sing if you tell him to
blows kisses

body parts he can point out:
hair
belly button
feet
hands
tongue
and sometimes mixes up his eyes and nose.

new words:
papa
pizza
bubble
ball
whoa!
he says the uh part in uh-oh
bye bye
and LOTS of babbling nonsense that i think is cussing me out.

and now onto business.
of course my first concern to his doc is,
he's still not walking!
and since i whined and complained enough
and told him how much it bothers me
he agreed to look into it.
first, we had to get bloodwork done
this tests to see
if parker has any kind of muscular disorder.
can we say traumatic?!
i thought i was going to pop his elbow backwards
i was holding it so tight.
and after he already got THREE shots in his legs that morning!
talk about a no good very bad day.

he also refered us to a PT/OT
so pj will see a pediatric physical therapist next friday.
i'm not sure what to expect there 
so i'm going to just go in with an open mind and see what advice,
exercises or tips they have.
from the pediatrician's experience,
sometimes physical therapy helps
and sometimes it doesn't
and the child probably would have learned to do it on their own.
but no matter what, it isn't going to hurt anything.
and i am all for doing anything and everything
that will help my little peanut succeed.
and lastly we're getting him evaluated with first steps.
that evaluation will take place next monday.
i'm excited and nervous at the same time.
someone will come to our house
and watch parker 'perform'
and decide whether or not he qualifies.
in order to qualify he has to have the gross motor skills 
of a baby at or below half of his age,
meaning an 8 month old.
i never thought i'd be going through this with my kid
but that's how parenting goes!
 we are rolling with the punches over here at the pracht house.
and enjoying our days with a non-walking toddler
while i'm still faster than him!


p.s. i failed and forgot to take a pic of him
at the apt.
the fact that he howled literally the entire time
reaching with all his might for the door to leave
may or may not have been the cause of this.






carpe diem
SEP